I-CARE - Newsletter #27 - September 2020

I-CARE - Newsletter #27 - September 2020

 I-CARE

IBD CANCER AND SERIOUS INFECTIONS IN EUROPE

?NEWSLETTER #27 ?? September 2020

I-CARE


?1. OVERWIEW

?INCLUSIONS ARE COMPLETED

?The Executive Committee would like to thank you for all the work you did since the beginning of the study in March 2016.

 

In May 2019, we have reached 10206 assessable patients.


We will now be able to focus on follow up and keep patients motivated in

?LAST REVIEW

?In total 13469 patients included.

 

10 206 patients have already filled-in at least 2 questionnaires and will be analyzed.

 

Congratulations to the 15 participating countries for the collaborative work!!!

 

5026 are being followed and 2951 have completed the study


?AGENDA

  • First publication Baseline Characteristic : end of 2020
  • LPLV : March 2022
  • Four main ICARE objective publications : from 2022 


2. DATA CONTROL QUALITY

ü Queries resolution : Important milestone for publication of baseline characteristics 

?The baseline characteristics will be analysed from screening and inclusion visit completed by each investigator in eCRF. 

 

7211 queries, among 8352 queries raised, were already solved. 

Thank You For This Great Team Work !!

 

However, 1141 queries are still pending to be solved.

We need your support and effort to solve these last queries before 20 OCTOBER 2020

 

This deadline for queries resolution is a crutial milestone for publication of baseline characteristics. 


3. CODING

?As a reminder, it is very important that :

  • Events are coded in order to be able to carry out analyses.
  • each center help in the recovery of their own events. By this way, coders will be able to code events of their country     

4. SUBSTUDIES

?All investigators have the opportunity to submit substudies.

 

To obtain your password, go to the website in the substudies section, fill in your email address and click on forgotten password. 

 

You will receive your password to connect to the platform of submission

 

?I-CARE TEAM : icare@getaid.org


4. TO CONTACT US

Global Mail Boxes

icare@getaid.org

Study Team List

?Project Director
Charlotte MAILHAT
cmailhat@getaid.org

?Project Manager
Marie COISNON
mcoisnon@getaid.org

?BELGIUM (BE)

?National Coordinators
Peter BOSSUYT
peter.bossuyt@imelda.be

Catherine REENAERS
catherinereenaers@hotmail.com

?Study Coordinators

Marjan STEPPE

marjan.steppe@birdgroup.be 

 

Saskia APPELMANS

saskia.appelmans@birdgroup.be

?GERMANY (DE)

?National Coordinators
Ulf HELWIG
helwig@internisten-ol.de

Britta SIEGMUND
britta.siegmund@charite.de

 

Christian MAASER
christian.maaser@klinikum-lueneburg.de

?Study Coordinators

J. HOECHSTOEDTER

j.hoechstoedter@kompetenznetz-ced.de

 

M. MOSER

m.moser@kompetenznetz-ced.de

R. GETTKOWSKI
r.gettkowski@kompetenznetz-ced.de

?DENMARK (DK)

?National Coordinators
Johan BURISCH
burisch@gmail.com

Mette JULSGAARD
MJN@ki.au.dk

?Study Coordinators

Susanne MAANSSON

susanne.maansson.01@regionh.dk

?SPAIN (ES)

?National Coordinators
Eugeni DOM?NECH
eugenidomenech@gmail.com

Javier GISBERT
javier.p.gisbert@gmail.com

?Study Coordinators

-

secretariacientifica1@geteccu.org

?FRANCE (FR)

?National Coordinators
Vered ABITBOL
vered.abitbol@cch.aphp.fr

Stephane NAHON
snahon@ch-montfermeil.fr

?Study Coordinators

-
tec-icare@getaid.org

Dalal MERKHOUFA
dmerkhoufa@getaid.org

?GREECE (GR)

?National Coordinators
Konstantinos KARMIRIS
kkarmiris@gmail.com 

Nikolaos VIAZIS
nikos.viazis@gmail.com

?Study Coordinators

T. KAREZOS
tkarezos@yahoo.gr

?HUNGARY (HU)

?National Coordinators
Tamás MOLNAR
 molnar.tamas@med.u-szeged.hu

Peter LAKATOS
kislakpet99@gmail.com

?Study Coordinators

P. GABRIELLA
pgabriella86@gmail.com

?IRELAND (IE)

?National Coordinators
Glen DOHERTY
g.doherty@st-vincents.ie 

Jane McCARTHY
jmccarthy@muh.ie 

?Study Coordinators

-
initiativeibd@gmail.com

 

Orla SMITH
orla.smith1@ucd.ie
orlasmith@svhg.ie

?ISRAEL (IL)

?National Coordinators
Uri  KOPYLOV
ukopylov@gmail.com

Henit YANAI
 henitya@clalit.org.il

?Study Coordinators

Noam ZINGBOIM

Noam.Zingboim@sheba.health.gov.il

 

Nina LEVHAR

Nina.Levhar@sheba.health.gov.il

 

VARDITSH

varditsh@clalit.org.il

 

SHIFRATO

shifrato@clalit.org.il

?ITALY (IT)

?National Coordinators
Alessandro ARMUZZI
alearmuzzi@yahoo.com 

Livia BIANCONE
biancone@med.uniroma2.it

?Study Coordinators

Marta COSSIGNANI

martacossignani@yahoo.it

?NETHERLANDS (NL)

?National Coordinators
Mark  LOWENBERG
m.lowenberg@amc.uva.nl

Bas OLDENBURG
b.oldenburg@umcutrecht.nl

?Study Coordinators

M. HOLSBERGEN
m.holsbergen@amc.uva.nl

J. DEJONG
j.dejong@amc.uva.nl

E. CLASQUIN
e.clasquin@amc.uva.nl

 

SC. NUMAN
S.C.Numan@umcutrecht.nl

?POLAND (PL)

?National Coordinators
Edyta  ZAGOROWICZ

ezagorowicz@wp.pl


Jaros?aw KIERKUS
j.kierkus@czd.pl

?Study Coordinators

I. JUTROWSKA
i.jutrowska@med-net.pl

?PORTUGAL (PT)

?National Coordinators
Fernando MAGRO

fm@med.up.pt

 

Luis CORREIRA

 laraujocorreia@gmail.com

?Study Coordinators

GEDI
gedi@med.up.pt

?SWEDEN (SE)

?National Coordinators

Jonas HALFVARSON

jonas.halfvarsson@orebroll.se 

 

Ann-Sofie BECKMAN

ann-sofie.backman@karolinska.se

?Study Coordinators

-
I-CARE@regionorebrolan.se

?UNITED KINGDOM (GB)

?National Coordinators
Shaji SEBASTIAN
Shaji.Sebastian@hey.nhs.uk 

?Study Coordinators

-

I.CARE-UK@hey.nhs.uk

?L'équipe I-CARE

GETAID
50 rue Richer, 75009 Paris
Tél. : 09 72 57 61 60 - Fax : 01 42 49 91 68
www.getaid.org - icare@getaid.org

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